Dendrite Clinical Systems is delighted to report that our Managing Director, Dr Peter Walton, has published a chapter discussing the value of clinical registries in new publication on Laparoscopic Sleeve Gastrectomy (LSG). In his Chapter, Dr Peter Walton outlines value of national bariatric registries and their capability to deliver evidence on a global basis, as well as providing some practical perspectives on best practice when setting out to start a national registry and how to keep a good registry going.
Dendrite Clinical Systems and the Institute for Health Research (IGES) in Berlin, Germany, have initiated the Outpatient Treatment of COVID-19 Infections (ABC-19) study, to record data on the treatment of COVID-19 patients and discover more about the outpatient course of the disease, the individual risk factors of patients that contribute to severe COVID-19 courses and the procedures of general practitioners (GPs).
Researchers at the University College London and University College London Hospitals NHS Foundation Trust), London, UK, have reported that the vast majority of participants with new onset loss of smell were positive for COVID19, and this acute loss of sense of smell needs to be considered globally as a criterion for self-isolation, testing and contact tracing in order to contain the spread of COVID-19.
Dendrite Clinical Systems’ innovative “Intellect Web” software has been chosen by an international group of 17 leading diabetes experts from the multidisciplinary Diabetes Surgery Summit (DSS), as the platform on which the CoviDiab project will establish a Global Registry to collect new cases of diabetes in patients with COVID-19.
Dendrite and UK research groups launch MASCOT Registry
Dendrite Clinical Systems – in collaboration with Haemotology Cancer Care (UCLH Charity), the Royal Free Charity, HaemSTAR (an organisation researching non-malignant haematology) and MPN Voice – have launched the MASCOT (Myeloproliferative Neoplasm Splanchnic Vein Thrombosis, MPN-SVT) Registry, a UK wide registry for patients with myeloproliferative diseases suffering from splanchnic or abdominal vein thrombosis.
Myeloproliferative neoplasms are a group of hematopoietic stem cell disorders characterised by clonal proliferation of myeloid-lineage cells. Arterial and venous thromboses are a major cause of morbidity in Ph-negative MPNs. Venous thrombosis may occur at unusual anatomic sites, such as splanchnic vein thrombosis or cerebral sinus thrombosis. SVT refers to thrombosis formation in the portal venous system (portal vein thrombosis, PVT), hepatic venous system Budd-Chiari syndrome (BCS), splenic venous system or mesenteric venous system1.
This prospective web-based patient registry that will collect, record and analyse the treatment and outcomes of patients with this condition.
“We are delighted to launch the MASCOT Registry,” said Dr Peter Walton, Managing Director of Dendrite Clinical Systems. “Myeloproliferative neoplasms are the most common underlying prothrombotic disorder found in patients with splanchnic vein thrombosis and the registry will provide valuable information on how to manage this prothrombotic disorder.
To better understand current practice, this online registry was developed by Dendrite using their “Intellect Web” software. This allows users to enter patient data online, using a range of modern html-5 compatible web browsers, without the need to install additional software or perform any complex system configurations.
Reference
- Ther Adv Hematol. 2017 Mar; 8(3): 107–118.
